Trial day #1 at school, FAIL!

     Well, today was the first day that neither my mom or myself went up to the school to help with Jayden's checks.  The health assistant asked to let her try on her own but that she would most likely be calling me when he came down.  I said ok, let's give it a run and see how you do seeing as my confidence was building with her understanding of how to handle Jayden and his pump.

     10am check, she checks his sugar, calls me, he's in the 300's so she double checks that she enters both his sugar and snack so that he can go back and eat it in class.  Ok, good so far.  11:45am comes, no call, but I thought maybe his sugar was fine, she felt good and was going to call me after lunch.  It's always bad to assume anything!  I get a call after lunch.  "Jayden was not sent down to check his sugar before lunch and I lost track of time, what do I do now?"  Um, what???  I find out that his teacher was responsible for giving math tests to the kindergartners so there was a substitute in his class, not trained to deal with him but she was right there if needed, so she forgot as she was stressed with trying to teach 5 & 6 year olds how to bubble in their answers.  The health assistant just didn't pay attention.  UGH!!!!!  I remained calm as losing it with her would have made her come unglued and undone all the training that I have worked so hard to do for the past 3 weeks.  I wanted to yell and scream, trust me but I didn't and I told her I was going to contact the principle and guidance counselor to find better solutions.  I am still waiting to train at least 2 backups and for my copy with all signatures of the 504 plan I put into place.  Deep breathes, deep breaths.........................

     Ok, so we just did a site change this morning, most likely his sugar was on the lower to normal range so we should be ok and he will be picked up in a few short hours and we will test again then so no worries, WRONG! 

     The health assistant forgot to give him back his log paper for me to know his numbers, so she went to find them now at recess and sees his teacher sitting at a table with a box of cupcakes and juice and was getting kids gathered to give out.  They usually do this at recess.  It seems every kids birthday is the beginning of school as this is the 2nd cupcake party they have had.  If I brought some on 8/29 for Jayden's birthday that would have made 3 in 3 weeks!  I was not even going to go there so I didn't and now I feel like the crappy mom that didn't celebrate her sons birthday in school but I also don't want my diabetic child eating all that crap! But if he sees it I can't say no.

     When the teacher saw her coming, she then panicked and said please take him to call his mom and see what to enter and if he can have it.  She did and I told her what to do and it was ok.  The health assistant thought she saw him about to be excluded but upon talking to his teacher that was not the case.  She had just sat down after having them do testing outside too and was asking the kids who wanted one and who didn't.  She had not got to Jayden yet and that would have sounded alarm bells for her to have a call into me.  Now of course his teacher is going to talk to the health assistant since they are not on the same page, ugh! 

     I work hard to avoid stress and complications yet somehow it finds me and drives me insane.  Now I have to meet with the principle, guidance counselor, health assistant and teacher to get this all sorted out again. Also, figure out who the back-ups are going to be and train them.  Living with diabetes 24/7 is a royal pain in the ass!  I hate it so much and wish I could get rid of it.  It's supposed to get easier and in some ways it does but in many others it just gets more complicated.  I HATE IT!

1 Corinthians 10:13 starting with verse 12

"So if you think you are standing firm, be careful that you dont fall! No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it."


What does not kill me, makes me stronger.-Friedrich Nietzsche,


German philosopher (1844 - 1900)

     I have a bracelet that says this and it helps remind me that these things will only make me stronger!  I will use these experiences to educate others and help other families avoid the struggles that I have endured and what no one should have to go through!  I will become an advocate for my son and so many others who are more commonly becoming diagnosed everyday.  It's sad that this disease is on the rise, yet so many know so little about it.

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2 comments:

Reyna said...

Wow. I am so sorry. I was bummed out to read this post. It will get better...it sucks feeling so alone, doesn't it. xo

Joanna said...

Thanks Reyna, ya it does. I can only hope and pray it will get better very soon. I'm glad I have at least found people like you and some of the other bloggers that also express their frustrations and have or are going through the same things. Just wished some of us lived closer together : )

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I'm a mother of 2 wonderful boys. My oldest who is 5 is a type 1 diabetic and was diagnosed 01/30/2009 at 2 1/2. My other son is almost 2 and has wheat and peanut allergies. So as you can see, my boys keep me on my toes. Thank goodness for my wonderful husband Jason, my family and friends who are very supportive.
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